Well, Bill is looking good!!! In my clinical opinion, he is as good as he has been since the surgery. Having his brother here this weekend has been a big plus in terms of fun. John and Cynthia visited last night, this afternoon, and are coming back this evening. We plan to go to dinner together, poor Bill will have to just hear about it. They brought him a pirate hat/scarf to go along with his eye patch. Pretty charming, I must say. So don’t worry, we a doing well again.
Thursday from Thelma
August 31, 2006 at 3:24 pm (Uncategorized)
I talked with Bill a few minutes ago. He had some therapy today and seems comfortable with things. It is still hard for him to remember what happens during the day and then relay that information to me. I will be seeing him tonight after work, but already know his schedule runs later in the day with a longer afternoon break than before.
My class went fine and the carpool arrangement is great. Paul will drive all the time and I will simply give him money for gas. How lucky for me. And I can tell he will be a reliable carpool partner. Elizabeth fixed our internet at home, it had been down since Saturday. Bill’s brother is coming tomorrow night, and I am looking forward to a long weekend.
Wednesday night
August 30, 2006 at 11:13 pm (from Thelma)
It’s late and I’m home from class. My carpool worked out great, and I will not actually have to drive, just contribute for the gas. Lucky me. AND Bill is settled into the rehab unit. He was taken down about three o’clock. Liz was there and I went home to get ready for class. I think I’ll go to bed now.
Mid afternoon
August 30, 2006 at 1:24 pm (from Thelma)
Still waiting for clearance from the insurance company. Won’t believe we are there until we see the threshold of the door at rehab. Wait and wait and wait. Liz coming this afternoon and I will go to class in Iowa City tonight. Feels like a month since I went to class last week.
Wednesday
August 30, 2006 at 8:53 am (from Thelma)
Well, Bill is definitely going to a private room in rehab here at the Burlington hospital. I am so greatful for that. He will be in room 109 and can be reached at 319-768-1091. I would not telephone before 4 PM on weekdays and not before noon on a Saturday. He will be busy with rehab appointments getting stronger in preparation to go home. I will try to blog more this afternoon. For now, just wanted to share the GOOD NEWS.
Tuesday
August 29, 2006 at 8:32 pm (Uncategorized)
Well, Bill is lots better today. That brings good and bad. Now they are anxious to get him out of here. This morning I was overwhelmed when they came to say he could not go to to the rehab unit and I would need to find a nursing home today. But, when the social worker came she said tomorrow would be more likely. The only information she could provide was a list of places and their telephone numbers, asking what city we would like Bill to go to. That’s it. No information about any of the places. She would call to see which ones had beds. Period. Then, she allowed for the remote possibility he would be able to be in a “transition unit” at this hospital. Since we all hoped that would be the plan instead of a nursing home she didn’t want to start calling the nursing homes until tomorrow AM when she had a final answer about the transition unit. I was very upset and crying in the hall. How in the world do you make a major decision with less information than you could get in the telephone book??? And then….the speech pathologist came in to evaluate Bill saying she had heard he was coming to the rehab unit (our first choice.) Two more therapists came in with the same information. When one noticed I was crying in the corner she came to see why and then promptly called rehab to check and see if her information was correct. Evidentally they meant he couldn’t go there TODAY. But they all believe he will be transferred there tomorrow. They already have him on their schedules. So…probably transferred tomorrow. I am staying right here in this room until I see exactly what transpires. I was on my way to work this morning when the doctor dropped in and unloaded the “go to nursing home now bomb.” If Bill is not in rehab tomorrow I will need to figure out all the nursing home questions and will be hysterical again. We knew he still needed care, but never dreamed you make such a decision with no information. As Liz told her doctor when she had her broken pelvis, you don’t understand. “Information is my life.”
Monday night
August 28, 2006 at 8:37 pm (from Thelma)
I came into the hospital very early this AM after I talked to the nurse. She confirmed Bill had developed a higher fever during the night. They took blood cultures and a chest x-ray, but do not see pneumonia. Nonetheless, they started the antibiotics his Iowa City pulmonologist has prescribed for each month. Does this all sound like second verse, same as first. It is a repeat of the conversations with the intensive care doctor in Iowa City, isn’t it? Soft signs, no clinical proof, etc, etc. They also stopped a medicine they believed was making him so sleepy. Tonight he is more awake, and the fever is down. He does feel a little congested, and the people who listen to his chest talk of wheezes and crackles. While that’s not good, I think the antibiotic will take over. Despite all their talk of no pneumonia, they have actually doubled the dose that he usually takes.
I am feeling a little like I’m running out of gas myself. I considered staying here at the hospital tonight, but only brought a clean shirt and pants. No pajamas or toothbrush. Guess I was pretty overwhelmed at 5:00 AM. However, I am encouraged as the nurse told us they are talking about transferring Bill downstairs in a day or two. That could mean a transition unit, or the same rehab as before. We are hoping it is the rehab. There is certainly plenty to work on. He still cannot stand or walk without assistance.
Sunday
August 27, 2006 at 1:52 pm (from Thelma)
Bill is very groggy today. There are no signs of pneumonia and his dilantin level is normal so they will begin it again. I am wondering if the antidepressant is making him so drowsy. I have called his drowsiness and lack of appetite to his nurse who checked all vitals. Just wait and see.
Guess I’ll just sit here and read the paper or study while he sleeps. It’s a lazy afternoon, I should be thankful.
Saturday
August 26, 2006 at 4:03 pm (from Thelma)
The pain in Bill’s back is relatively infrequent now – just when he sits or stands in certain positions. He requires a spotter when he walks, but walking daily is considered important to avoid blood clots and get strength back. The PT here today said she feels there would be definite reasons to justify having him in inpatient rehabilitation again. We are hoping the doctor order that before he comes home again, as you already know. Bill is still sleepy and a little lethargic today still, but the dilantin level remains to high to start it up again. So symptoms are attributed to that.
The doctor is definitely listening to me now. He asked details of how our pulmonologist, Dr. Moy treated Bill, and has essentially recreated all that now. I have been concerned again about not doing the percussion therapy just like I was at the other hospital. But I have also found that my friend Barbara faxed the copies of the MRI reports to Dr Moy for me and Dr Moy sent a letter immediately here detailing his feelings about the care Bill needs. I would never have thought of that with out Barb’s suggestion. You may recall she is my friend who wishes she had suggestions for traveling in France, but mainly knows about the “healthy wives club.” and waiting in the hospital.
For those of you who are envious of my housekeeper, just a few more details. I told her not to come Wednesday since things were so chaotic. So she obliged with no complaint. However, without my knowledge she just stopped by, took our laundry to her house and returned it the next day clean and folded or hung. She watered the outside plants on her way out. Does anybody remember the TV show with the housekeeper who was so amazing? It was her own show and there were a lot of kids in the family. I just can’t think of it, but mine definitely compares.
Bill is sleeping now, and I am doing a little studying. We moved across the room when his roommate left. Now we are on the side with the window, sofa, and lots of room for me. I must return to studies while I can…or perhaps a nap.
A “Hallmark” special thought:
September 2, 2006 at 3:19 pm (Comments from Bill)
May the sofa rise
to meet you,
May the TV shine warm
upon your face,
And may fluffed cushions
always be at your back.
— Snoopy learned that from an Irish setter.
…………………………………………..
I am feeling more myself and am hopeful of emerging from rehab ready to enjoy September. Then will have time to email you personally as well as I can. Thanks. -Bill
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